Carole Scrafton

Patient & Health Advocate - FibroFlutters

Carole has established FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses, a patient-driven and focused patient advocacy organisation that is for everyone #notjustpatients. She is a patient with chronic illness and a genetic rare disease

Connecting different stakeholders from across the industry and helping to develop, nurture and advocate for multidisciplinary / multi-stakeholder approaches to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need.  Supporting disease education and awareness through better medical and health communications.

Carole campaigns and advocates at many levels including patient forums, as well as taking part in many global conferences, in person or via the internet. She encourages more efficient patient engagement practises with a view to the better development of therapies and treatments within the pharma, medical, and clinical environments.